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Hollis in a coma, fundraiser, please help.

hey, uh... hai.
Good timing I guess.
Agent Chaos posted this today, It talks of visiting, it talks of improvements.

Hollis Visiting Situation:
Hollis is now in a different room.
Hollis is in the Mission now, with a beautiful view of Bernal Hill.
room #835
St. Luke's
3555 Cesar Chavez St. (@ Valencia)
San Francisco, CA 94110
Visiting hours are 12-8pm

Here's today's post.

Now on to the good news.
As we know with brain injuries, these things take time. Constant updates would be quite boring but over the long span of things, the progress is amazing.
The last couple weeks have been showing great leaps.
It started with her sipping liquid with a spoon. The first thing that someone fed her was a sip of Framboise, one of her most favored liquids.
Then a few days later she was slurping up some applesauce.
This is a great thing because each time I go I remind her that if she can start swallowing and eating, she can get the tracheotomy out.
One less string attached to the hospital should improve her mental environment.
Previously, her right arm had been extremely tight and curled to her body. This trauma position has been something the visitors have been trying to work on, relaxing her arm. In the past few weeks this arm has been much more relaxed. Her left arm has been feeling her right arm, as if she is aware that it is misbehaving. This left arm also explores your hands and her traech tube. It shows her awareness is sharpening.

As I get more used to visiting Hollis in the state she is in, I have learned a few things on how to talk to her even better than before. I felt in the first few months that when I went to see her I just tried to pour out all of my energy to her, coaxing her through a dark tunnel into the light. This always resulted in the feeling of incredible gravity after the visit. It took quite a while to get back to normal. Well, a couple of weeks ago we had a multiple person craniosacral therapy session, and one of the therapists talked to me about it later. She advised me not to give her too much. She said that I should maintain a normal relationship and see if I can reach her through the subconscious. It is along the same lines of not babying her. Talk to her like you would last year. If you know her, you know how headstrong she is and that baby talk pisses her off. I really tried not to talk to her that way, but there was a certain patronizing tone, a tone of hope. I went in later in the week and sat by her side in her chair, peeking my head under her droopy head and told her everything about what is going on outside her window. Her head doesn't really stay up on her own for very long, but her eyes will look at you and she will respond to your stories. She communicates when she understands a story and it makes her remember. This visit she was smiling and clearing her mouth. Swallowing her saliva. This is a great sign. I feel like she is close to forming words.

One of my visits, I grabbed an In Touch Magazine and sat in her bed and read out loud to her. She was checking out all the pictures and kept her attention the whole time. I think she really liked it. I brought in the cover of the Guardian that The Derailleurs were featured. She started crying. She is there. Our job is to keep her updated on the outside world.

Speaking of outside world, her mother's plans for her is to take her to Tennessee when she is able to have homecare. There is a debate now on what to do with the stuff in her storage unit. Her mother would like to have a big garage sale and her close friends would like to chain themselves to the storage unit. It is heating up. This is the official opening of the forum on this topic. Talk amongst yourselves and send a representative with your argument.

In conclusion, bring intellectually stimulating media, conversations of the outside world, and talk to her as if she can respond to you, like you were hanging out. Get over your sadness and despair because yours couldn't possibly match her own.
Posted by Agent Chaos at 12:11 PM
 
Diane's webpage lists Hollis's room as 835A
and gives the phone number to the hospital.
415.641.6885
 
two posts, looks like Hollis is moving.

Wednesday, June 24, 2009
Call for Help!
Hi everyone. This is Jill posting. I know you haven't heard from me in a while. I handed the reigns over to Diane shortly after they got to California. The time has now come to bring Holli back to Nashville. Diane has been so devoted to Holli and her care, but it is getting to the point where she will no longer be any good to Holli if we don't get them home. Holli's extended family in San Fran have been wonderfully supportive and loving to Diane, but we all know that there's NO PLACE LIKE HOME!
So.......... this is what we need. We need contacts in Nashville. Holli will need an accepting facility and an accepting physician in Nashville. Please if anyone has any connections within the health care community in Nashville, we could use your help. If you aren't comfortable communicating through this blog, you can email me at jilllyle@hughes.net. Everyone was soooo helpful when we were trying to get Holli to the states........ so let's do this now for Diane. Holli will certainly be in good hands in Nashville also, but if Diane is going to be her caregiver, she needs to get back home.


Thanks again for all your support,

Jill
Posted by Jill at 12:16 PM 2 comments
Sunday, June 21, 2009
4 Months
As we approach the 4 month mark since Holli's accident, I can see that even though it is a slow process , Holli is making progress. We have been so blessed to have so many friends, loved one and even strangers that have helped us this far with their love, prayers and contributions. I know God has had his hand in every step of the way and that He will continue to be with Holli and me as we continue this journey. I want to thank everyone again for everything they have done. I really appreciate the calls, cards and emails. I pray that before long that the door will be opened for Holli and I to return to Nashville where she can continue to improve and hopefully wake up soon. I know that is where we need to be for many reasons but I do not know how or when that will occur. I will continue to pray for guidance and strength. Holli is still being very vocal at times with the same sounds that she has been making. There really is not much to report that is new. The doctor is trying a couple of medications again to try to help wake her up. I can tell she is getting frustrated at times trying to "talk". She is saying the M sound and at times the word Help. I was so blessed to have had my Mom, Dad and sister, Deree here with me this past week. It was bitter sweet....great being with them but sad because of the circumstances. I know Holli knew they were here and tried to let us know that in her own way. It was very hard for me to tell them good-bye. It has helped that her good friend from Nashville Wendi is here for the next several days. Holli and Wendi lived in the same neighborhood and found each other again several years ago. She has been a great support for me. I also have made some great friends here in San Francisco that has really been a comfort for me and is always looking out after me. I also want to wish my 89 year old Dad, Happy Father's Day. You are a great inspiration and I love you and Mom dearly. Well, Holli is finally asleep for the night so I guess I can also try to get some rest. Please continue to keep us in your prayers.
Diane
Posted by paigereno at 9:09 PM
 
from http://friendsofhollis.blogspot.com/

Saturday, June 27, 2009
Hollis is doing it!
Hello everyone,
Thanks for continually keeping tabs on our lady Hollis.
As per my last visit, just a week or two after this last post, I see her improving quite nicely.
When I entered the room, she was in her chair and her head was not all droopy. Her head was upright and her eyes looking to the right. Her eyes kept that position the whole time. She will usually move her eyes around for me, looking at me, etc. But she was concentrating. It was like she was in a trance. And that trance was the determination to speak. She would repeat her words over and over again, not satisfied by the poor deliveries. She would try to say a sentence, get a few words into it, and purse her lips with a mmmmm sound. Then try again.
A few of the things I thought she was saying was:
"I want to go home"
"I want my mom"
"Elizmmmm" I really feel like she was mouthing my name but didn't quite understand the "z" sound yet.
She is determined.
I had a few dreams about her in the last few weeks where she was talking and I was surprised and she was like, " Did you think I would forget how to speak?" all sassy like.

This is great. I was talking to an old friend and he has seen many brain injuries. He wanted to clarify that she should definitely be read to but to keep it fairly simple. Not simpleton, just not Tolstoy etc. He said everything is all jumbled up in there and the clearer the material, the easier it is to make a cognitive map.

And now on to the storage thing.

First of all, I would like to apologize because I didn't super proofread the previous post before I posted it. My computer broke, so I am not online all the time, and I felt like I owed you all an update while I was at a computer. I misscommunicated or even created unintentionally this "heating up" of the storage debate.
I feel like it is my intention to relay what is going on with Hollis to her support network and in the process I hurt Diane's feelings. This is the last thing I want to do.
The reason I said there was a debate at all is because there was. I am a middlewoman and I needed to get more input so I knew how to deal with the upset that came when I said I would open up the storage unit at all.
Diane isn't an evil caretaker, wanting to sell off all her belongings. She is the most sturdy and dedicated woman. She is amazing and I have SO much respect for her. She wants to send the important stuff home for Hollis to be around and use when she is able. She also needs to tie up loose ends and cut unnecessary spending.

I posted the wrong wording. I made it look like two sides are fighting, but we are all working together, and sometimes ideals differ. Hollis put me as a person who could get into her storage unit before all this happened. I agree we should keep her things together so she has memory capsules to peruse. I also agree that paying the rent on her storage unit could be unnecessary or burdensome. I have some of her belongingsin my room from before she left because we were sharing a room. I need to put those in her storage unit. In doing so, I will also assess the situation. I will not snoop or toss or sell any of her things. Just see what that room holds.

In conclusion, I don't need anyone to "weigh in" on the debate anymore. It is not a debate, and the consensus among us all is that Hollis' belongings are for her and they are safe.

I apologize to Diane and the rest of you for this unnecessary drama.
Posted by Agent Chaos at 2:07 PM 5 comments
 
Hey I bet you could find a local person (a friend) who may be able to hold Hollis stuff (for free) until the time is right....

Good luck on everything, I pray for her often... :)

I am not a old friend but a new one... I do have the space but I am 1.5 hrs away from you all, I am near Sacramento but someone close should be able to help. :)
 
and this from http://friendsofhollis.blogspot.com/

Friday, July 3, 2009
Hollis and High-5's
Yesterday I went in to say hello to Hollis and we worked on high fives for a while.
It's slow reaction, but she does raise her left hand for the magic of the palm slap. One time she really gave it her all with some force.
This is a great sign and one that can hopefully turn into communication. She understands what I say and responds. We still don't have the "yes" "no" communications, but this is a good step.

After the high5's I gave her a dancing lesson on proper body mechanics. We held both hands wide and danced a bit to some music. I introduced her two hands to themselves and told her about bi-lateral symmetry and advised her to work on her right hands range of motion.
It was truly fun.
I am on my way to the hospital right now with some Derailleurs for a drawing experiment.
Posted by Agent Chaos at 5:04 PM 1 comments
 
Hey all, I was away for a bit, there has been one nice post at http://friendsofhollis.blogspot.com/ since I last updated this thread, here it is;

Sunday, July 5, 2009
Sassy
The three Derailleurs show up to Hollis' room and she's calmer than usual.
Her neck is straighter, not drooping down, but the first semblance of upright I have seen yet.
We say hello and start showing her other bike dance teams' videos on YouTube. She watches them all, very intent. We talk about moves that have been recycled and the politics of making up dances in a new genre of movement.
Hollis remembered the high five as soon as I got up on her bed. It was great. Then I showed her some of my drawings in a sketchbook. I showed her some of the drawings we had made together when we lived at the Willow street house. I busted out a pink highlighter and put it in her right hand. This is the hand that is curled to her body. She had no problem holding it. She wouldn't look at the page though. I tried waving my fingers to draw her down to it, but it seemed like she was hesitant. We moved the pen along the blank paper, my hand guiding hers. She would move her hand ever so slightly, decimeters at a time. I decided to try the left hand. The one that has had it's fingers extended for a week now. The day before we were working on "grabbing" and I asked her if she remembered that lesson yesterday. The back of her hand is very sensitive. Whenever I touch that area, her hand jumps. It takes a minute to show her the mechanics of wrapping her fingers around the pen. She holds it for a minute and we draw. The left side has larger movements. She moved the pen around in centimeters on this side. We didn't play for very long because she wouldn't look at the paper. She seemed to get tired when it got hard. I think she was also hesitant because of the amount of people in the room, staring hopefully at the page, expecting a miracle. She dozed off purposefully and we started gathering our things. She had been very quiet the whole visit. When she would utter sounds, her voice sounded hoarse. I guess earlier that day she had been pretty talkative.
Her mother said that while she was getting her nurse attention that morning, her right leg started to kick about. This was perhaps the first time this had happened since they were giving her ritalin. This is a sign of her bi-lateral symmetry working itself out. Yay!

We said goodbye, and I stuck my head in her face and gave her a huge smile. It's a genuine smile because I see her brainy icecaps melting. Coming out of an ice age. I see she is more and more herself and her old sassy attitude was apparent in the scowl she was matching with my grin. We stared at each other, our yin-yang expressions, in a facial battle. After a moment, I copied the look she was giving me, being her mirror. She instantly shut her eyes.
"Oh BUSTED!" I say. "Girl, I am just being your mirror and it looks like you don't like the way you are staring at me. Can't handle the taste of your own medicine, eh?"
I told her that they haven't outlawed smiling yet, and that is something she should work on. "I want to see a smile on our face next time I visit. And I want you to start saying 'wifey'. I am not going to give up, babe." I had a feeling she was feigning tired when we all came into the room, and the slamming shut of her eyes when she saw something she didn't like solidified it. I called her out on it. That sassy girl knows more than she lets on.
I have been spending quite a bit of time with her this week because she might be leaving us soon to go back home to Nashville. Her mother deserves to be in her husband's arms again, resume her life after this tragedy, reconnect with her strong southern support network.

I feel like I have a lot of work to do with her before she leaves. I have some guilt for not being there every week, sometimes not coming for a few weeks. I have to keep doing exercises and activities so I can see for myself what a little involvement will yield. It looks like the high fives have stuck. Now on to singing, dancing, and drawing. Ron Turner, one of the thousands of amazing beneficiaries and also the sponsor of sending her stuff to Nashville, related to me the tale of his friend with a brain injury. He said that while they have a hard time talking, singing is easier. The tones are set and in the subconscious and easier to release than pure expression. It's a maze in there and whatever you can coax out will help show the exit. It reminds me of the first few weeks after she awoke that I was singing Somewhere Over the Rainbow and she was matching my tones, awkwardly mumbling, finding the notes. In those chaotic times, my singing to her seemed to speak to her more clearly than my sentences.
I wonder about the perfect song.
Posted by Agent Chaos at 1:56 PM 3 comments


And this, from here http://helpholligethome.blogspot.com/
(Hey, it looks like Hollis dd get some free storage so that is cool)

Monday, July 13, 2009
Update
It has been several weeks since I last posted a note. I was hoping to get some responses from the posting that my niece, Jill made regarding helping us get Holli back to Tennessee.
Holli has not had a very good week, she has been vomiting and it has become more frequent in the last several days. We are trying to figure out what might be causing this to occur. The doctor has stopped the last medication he started to see if this is the culprit. I can tell she does not feel good...they are giving her medication for her nausea and vomiting which helps. It makes it very hard to figure out when she can't tell you how she is feeling. I pray we can get this figured out soon.
I am still trying to find a facility that will accept us in Tennessee. I have a doctor who is willing to accept her but because lack of insurance makes it harder to find a skilled facility for her that will meet her needs. I keep praying that the right door will open to make this all possible. I need to get back home to my husband and I need to take Holli with me. She has a ways to go to "wake up" and even longer to recover from this brain injury.
I am in the process of mailing home Holli's personal belongings and moving her storage to a warehouse that will store her belongings and will not charge us with the help of her loving friends. I could not do all this by myself and I am so grateful to those special people who have helped make all this happen. I love you guys!
I hope the next time I post on the blog that I will have a positive update for you regarding Holli's progress.
Diane
Posted by paigereno at 4:01 PM 6 comments
 
from: http://friendsofhollis.blogspot.com/

Thursday, July 23, 2009
Bring it on home...
Hey everybody it's Harrison. So I know a lot of people have been asking me to write something and my silence may seem inappropriate to some. But now it is time for action so I can not stutter anymore. I've never been an internet person. No myspace or facebook, shudder at twitter and made fun of bloggers. Well boy was I dead wrong and seeing the value that the internet has had, in manifesting actual care and love, was astounding. I have tried to think of what to write just about every day... it plagues me. It drove me to a bad place for a while, well there were a lot of things that drove me there. As to be expected due to the reality of the situation upon our return. The whole time I was trying to stay strong for Hollis I was also crumbling and terribly sick with parasites I brought back. I lost 20 pounds and started generally being wretchedly unhealthy to myself all around. If a part of Hollis may have died, that remains to be seen. But I definitely felt partially dead. At the last minute I went to Venice with the 'Swimming Cities of Serenissima' boat project... there I found life again. I learned to genuinely smile and have fun, things I literally never thought I would do in full again. I have a list of thanks to those who went above and beyond to get us back and dive into Hollis's care and recovery ... and then to revive me. Soon, I want to actually write out and post on this blog and send letters and hugs and art and new found smiles to all who helped and pushed with all their might. The biggest thanks of all goes to Diane. There aren't many people in the world like Diane. I did learn a new found strength that I didn't know I possessed. None of that strength holds a candle to the strength that Diane has shown. That said it is time to get Diane home. There can not be two casualties from this one accident. I myself know that I nearly dodged a bullet and pulled myself out with the amazing help of my loved ones and it is time to show Diane, our loved one, that our hands are far reaching. Let's carry our wounded bird and her mother home to Nashville, Tennessee. What do we need to do to make this happen? All the momentum that was there when we were in India and just getting back is still pulsing in remission and I hope this call out gets passed around on the Facebooks and email lists etc. this is not a call to close this chapter of our lives and move on, we are with Hollis in person and our thoughts and hearts but Diane deserves the shattered remains of her life and love back. It's like a bomb was dropped on her life and it is time to rebuild and get her back to her husband who misses her immensely. This is all so intense and fucked up and the news isn't good and the light at the end of the tunnel is dim. I understand everyone wants updates but the truth is is that she has plateaued in a terrible place with some small steps forward and other steps back. Tragedy is a fact of life. What we have to do now is make the best of it. The best situation is for our beloved friend who is a tragic abbreviated version of herself to go back into her mothers arms and life adjusts. So let's make this happen as quickly and painlessly as possible. The doctors say the tracheotomy could be taken out if needed. We need to get doctors onboard and write and call Nashville politicians and agencies. We need to get her on TennCare and we need to find a caretaking facility that isn't going to let her choke to death on her own vomit. The money is there but we know that this is a long haul we are looking at. I told Diane that when the money runs out we will make more but the step by step of exactly how to get her home and where she will go and who will care for her are things that we need all of our hands on. Now. Start making phone calls, writing e-mails and researching. Producing the magical contacts that poured in when we were trying to get back to the states. St. Lukes has been amazing but Diane can not live in that hospital room anymore. We will see Hollis... she is in the center of the country and Diane has assured me that anyone can go visit her. I am personally trying to save a lot of my energy for when she is doing better and entering a more outward step of her healing, as opposed to the more internal healing that she needs to do right now. I am by no means leaving her side for any of it. I can not begin to explain to you what it is like for me to see a person that I love so much in the state she is in. I'm there, I'm visiting, but it hurts far more than is sustainable and healthy to spend as much time as I thought I would. My update is simple... I'm okay now, Hollis isn't, neither is Diane and we need to get them home. The thought of Hollis going back to Tennessee away from her friends and community that she has built for herself as an artist, lover and a fighter, was once too painful to even mention. Then my second day in Italy, during some deep crying screaming fit therapy with some of my dearest friends on this planet, I realized that she has to go home and it's okay. It doesn't mean I did a bad job, we did the best we could possibly do but her mother needs to start to live again. Sorry for the harsh tone of this post but it reflect the harshness and the reality of the situation.
Love you guys. -Harrison
 
from http://helpholligethome.blogspot.com/

Sunday, July 26, 2009
Doing Better
Finally Holli has had some good days after several weeks of problems. Her electrolytes are back in normal range and her IV fluids have been stopped. She continues to be very quite. She has not tried to make any sounds for the past several weeks but she is very calm. For a couple of days I found her focusing on the tv that is hanging from the ceiling. I started finding movies for her to watch but today she did not seem interested in the tv. She has started tracking more with her eyes at times and focusing on people more.

I boxed up the last of Holli's belongings here in the room to be shipped out on Tuesday. The walls seem so bare and depressing without all the posters and pictures of Holli hanging on the wall. It was really hard telling a couple of Holli's good friends good-bye today. Frannie is moving to Mexico and DA will be leaving for his job at Burning Man tomorrow. They both promised to come see Holli in Tn. I told them the door will always be open. The hard part about leaving is having to tell Holli's and now my friends good bye.

I am still hoping to hear from Bourdeaux or Trevecca but will try other facilities to see if they will take our application pending tenncare. I pray something will become available soon so Holli and I can go home. I am so homesick for my family. I will be missing my twin grand daughters birthday this Tuesday. Happy Birthday Sarah and Rachel...Gran Gran loves and misses you so very much!
Diane
Posted by paigereno at 7:35 PM 0 comments
Tuesday, July 21, 2009
Not a good week
Holli is still having some complications due to her previous vomiting and then needing to have enemas and laxatives. This caused her to get dehydrated and her electrolytes imbalanced. She is receiving IV fluids along with her feeding trying to get her blood work back to normal. This has been a hard last several weeks for her as well as myself. She is very quite now and does not try to make any sounds but still opens her eyes and moves her left side.
I am still trying to get Holli placed in a facility in Nashville. Bordeaux is where I am trying to get a bed. Because of her not having insurance until we can get to Tennessee and apply for tenncare and no beds at this present time has become an issue. The admission's nurse has given her case to her supervisor to review but did not sound promising. I need special prayers at this time for Holli's medical problems and for us to find a facility. I am trying not to get discouraged but it is really hard sometimes not to feel very low and helpless. It has been 5 months since the accident. I pray that something good will happen soon.
Diane
Posted by paigereno at 5:16 PM 5 comments
 
Holli talks!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!!!!!!!!!!!!

http://helpholligethome.blogspot.com/
Tuesday, July 28, 2009
Holli talks!
I am on cloud nine! Today when Holli was in the chair and I put her speaking valve on her trach , in a very soft, quiet voice Holli said "I love you, Mom" " I love you!" She has not said any more at this time, but this is a start. I thank you Lord for answering so many prayers. I know this is just the beginning.....
Diane
Posted by paigereno at 1:51 PM
 
http://helpholligethome.blogspot.com/
Tuesday, July 28, 2009
Holli talks!
I am on cloud nine! Today when Holli was in the chair and I put her speaking valve on her trach , in a very soft, quiet voice Holli said "I love you, Mom" " I love you!" She has not said any more at this time, but this is a start. I thank you Lord for answering so many prayers. I know this is just the beginning.....
Diane
Posted by paigereno at 1:51 PM
Wow! That is wonderful! I am so happy for you and Holli to have come as far as you have already! :thumbup
 
from http://helpholligethome.blogspot.com/

Wednesday, July 29, 2009
Eliza's Visit
I am so amazed...Eliza has been here visiting with Holli. She has been lying beside her talking with her and coaching her in yoga breathing. Holli is constantly talking with her but it is hard to understand her Eliza told her not to hold it in if she wanted to cry ....Holli all of a sudden started whaling....crying loudly for a few minutes which made me burst into tears....she is still trying really hard to "talk" to Eliza but it is so hard to understand......she is coming back to us! She has had several episodes of loudly crying....I think she has realized what has happen to her and she is distraught. This is so hard to watch but I know it is something she has to go through....her grieving......please pray for Holli to have peace.
Diane
Posted by paigereno at 6:29 PM 2 comments
FYI
Just wanted to clarify that it is not Franny Corsick that moved to Mexico but Holli's friend Frannie from the Derailleurs. Poor Franny has been swamped with calls....sorry Franny! Holli intermittently has been trying to very softly talk. It is so soft at times that I am having a hard time trying to understand. Last night she did say I love you too and mm hum when I asked her a question. I will keep you posted. Keep up the prayers!

Diane
Posted by paigereno at 11:28 AM 1 comments
 
Thanks for the updates
 
checked in today to find her talking! that is fantastic. keep us updated and hang in there.
 
checked in today to find her talking! that is fantastic. keep us updated and hang in there.
Oh, I thought you were talking about this thread here, maybe you were...
or from here, an update on Thursday...wow! http://friendsofhollis.blogspot.com/

Thursday, July 30, 2009
It's HAPPENING!!!
I will try to recount this tale as accurately as possible. I may mix up the order, but the details are what's important.

As you may have heard, Hollis spoke the words, "I love you, Mom." two days ago.
Everywhere I went people were telling me they heard the great news and started crying.
I was so amazed at how many people in my immediate day had connections to Hollis. I was also blown away by the quickness that spread by word of telephone. Mine was shut off, and within hours I was getting facebook messages and people in the streets already knew. Wow!?!

I had to see what all the commotion was about.

I go into the room and it is very bare. All the decorations have been sent home for her transition. But spirits are high and Karen and Diane are catching up.
I'll just get straight to the point.
I get up in her face, show her some photos J.Crush had brought, of us performing at the Roller Derby halftime. I described each scene and what part of the dance we were doing. Sometimes I would count it out the way we do at practice so she would know exactly where in the song the picture was taken. I showed her some of the new Derailleurs. I told her to notice how synchronized we were. The pictures were amazing! She took them in with intent curiosity.
I told her about my life and my woes and what's going on in my life.
Then I got up in her face and went over circular breathing, through the nose and out the mouth. I told her about how the first breath fills the chest, the second down to the diaphragm, and the third one under the belly button. I lead her in some breathing exercises, telling her the benefits of increasing the lung capacity and expelling stored grief (Chinese med.). I told her to bring it to her crown and down into her toes. Down the leg that doesn't move especially. Her right knee twitched with awareness, her toes wiggled just a little. Not even imagining it. I told her I felt it and she did it again.
Then I asked her for a high five and her tense ol' right arm started moving, slowly, in abeyance! In place of the left one. Awesome.
I then proceeded to put pressure on her arm to bring it down to neutral. I let her know the muscles she was tensing and I asked her if it pinched and she said, "Yeah." then "I'm getting better." Yes. She said that! (omg) Diane's eyes bugged out of her head!

Then we got her arm down and I told her to relax it. She was moving her fingers and wrists. A few times of being interrupted with medicine, she tensed up again and I told her that she should relax her arm again. The second time she did it with barely any resistance.
I snuggled up on the bed and put her hands on my stomach to feel me inhale and see how it felt when I breathed into my stomach. Then I put her hands on her belly and showed her where to breathe. I felt her middle wiggle and the muscles contract. She was getting it. I told her about how good it feels to push oxygen into the dark corners of her body, makes it tingle, and she said, "uh huh." Diane and I had our heads right within ear range because shortly she was muttering very differently sounding things all in a row under her breath. We would exchange glances to see if each other got that, but we both mirrored each other. Ok, keep her on the line.
She quieted and Diane went to catch the last call for hospital food. I was talking to her, trying to tell her stuff she might respond to, curled up in her arms on the bed.
She started talking a bunch. Whole sentences. Couldn't get much. Diane came back. Bless her heart, moms can understand the language of their own, before anyone can decipher it. She spends so much time with her, they are intertwined.
I heard, "I don't know..." and her Diane so helpfully asked her, "Did you just say you don't know what happened?"
I then asked her if she remembers going to India and that she had a motorcycle accident. She repeated the word, "Motorcycle." I asked her if she remembers being afraid of the motorcycle before she went. She said, "Yeah."
Diane told her that she had been sleeping for 5 months. Shortly after she began to cry.
This was a new cry. A cry of congniscience and awareness of her situation. It was a deep, meaningful, relief cry. A "Tear-through-the-paper" cry. She was aware of the situation and she was letting the sad parts release into the atmosphere in a cold rip of reality. After she released, I told her about how in Craniosacral therapy, one of the ten signs of release is crying, called a somato-emotional response. I asked her if she remembered me telling her this when I came home from my weekend retreats, learning the stuff. She said, "Yeah." I told her about how that means she is getting better and things will be getting easier. To change the subject, I asked her if she might consider choreographing a marionette dance, relaying and releasing the feelings she had with the wires and tubes connected to her. She said, "yeah." Then I asked her what the first food she would eat will be. Ice cream, salad, coconut milk..." She started crying! I think she is so ready for some coconut water! (Fresh styles.) We let her expell the sadness of not being able to eat. Then assured her that there is so many good things to look forward to. We let her know that whenever she felt sadness, no matter who is in the room, she should let go of it. She started hackin up some mucous, and I told her that this was another one of the ten signs and that she is making more room in her lungs for happiness and expelling grief. She stared saying a few more things that we couldn't catch.
At this point it gets hazy because I am lost in space-time because of a dream I had and wrote about previosly. Time passes and I ask her politely to repeat what she said. Sometimes she would, sometimes she was on to something else.
She brought up the word "dream" in one of her sentences.
You know my ears perked up to that one. I told her that she has not only been communicating with me in dreams, but also more people than just me. She was into the subject. She repeated it again. I can't even imagine what she has been dreaming.

That reminds me:
If I you have had a dream with Hollis in it: WRITE IT UP!
I want her to have a log as well as I think it is a valuable medicine for her.
As well as a study of parapsychology.

Ok. It's late, I am missing out on some details.
I will fill in more when I remember them. I just thought you would want to know.
Thank you for caring and contiually showing your support for this woman who knows she has power deep inside and when she doesn't have any, she has us.
Posted by Agent Chaos at 11:01 PM 4 comments



and here http://helpholligethome.blogspot.com/

Friday, July 31, 2009
Friday
Holli had several friends visit her today. She would have rare periods when she would try to say something but mostly would focus in on her friends and seem to really listen to what they were saying. Her voice is barely a whisper and I can not read lips. I want so badly to be able to understand what she is saying. I know that day will come, hopefully soon. I think it is good for her friends to be here and stimulate her. The last two nights after she is given her sleeping medication, Holli has gotten the biggest smile on her face and twinkling eyes. She almost looks like she wants to laugh. I try to get her to tell me what is making her so happy but she just smiles. It is a beautiful sight!
Diane
Posted by paigereno at 10:07 PM 0 comments
 
This made me cry!!!!
 
Oh, me too!! Right here at work!

Don't know/never met Holli, just hard not to feel something after checking in on the thread every couple weeks.

Go Holli, GO!!!!

Seconded - I check in every so often but was on vacation last week and just read from July 28 until now. What terrific news!!! Such amazing progress after so, so long. :party
 
Wow I was brought to tears at the last post on Hollis's webpage. I am so glad she is able to speak and by the looks of it doing much better!
 
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