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Hollis in a coma, fundraiser, please help.

Hey all, I held back on Diane's last post, Now there is another one from Agent Chaos that is wonderful.
First from http://helpholligethome.blogspot.com/
Thursday, August 6,2009
I wish I could report that Holli has continued to talk but she has been very quiet for the past 4 to 5 days. It is almost like she has regressed back to her previous state of just being very quiet. She does still focus on people but does not try to speak. I still encourage her everyday to try to talk. She is being seen by another physician that does healing hands therapy with meditation or what they call reike (rei means Divine and ke means energy). I was told by one of Holli's visitors that when she went through breast cancer that she had reike therapy and it helped her recover twice as fast. She highly recommended it for Holli. This therapy was suggested by her primary physician. I am still waiting to hear something about a facility in Nashville but so far no word. Thanks for keeping us in your thoughts and prayers.
Diane
Posted by paigereno at 2:35 PM

And the latest from http://friendsofhollis.blogspot.com/

Friday, August 14, 2009
I snuck a peek..
Went in to see Hollis on Wednesday and she was pretty chill. Seemed to be thinking about something.
Then I saw a note on the bed in place of Diane. It was from Harrison with some good news.
Said he was talking silly stuff and got her to smile ear to ear.
While I did not see it myself, it was written in Harrison's writing, dated just a few moments before I arrived.

Thought you should know this visual.

Yin Yangin' it.
Posted by Agent Chaos at 4:23 PM
 
The latest from Diane at http://helpholligethome.blogspot.com/

Monday, August 17
Holli is still very quiet but she is focusing very intently on people and her surroundings. She checks out the staffs name tags when they come in to care for her. She will look right at you and usually follow you with her eyes around the room. Today when Eliza came by and played music and danced in the room, Holli watched her every move. Holli also is now reaching up more and more with her left hand to her face and this weekend she watched the movie Aladdin on tv. These are little things but they are small positive steps. She has again started moving her mouth, smacking her lips like she wants to say something but has not made any sounds. I feel like it is around the corner that she will start talking again. Her doctor keeps on adjusting her medication to help her get more awake. I can't wait till the day that she talks with me again.
On a personal note I was unable to get my leave extended so as of August 26th I will be taking early retirement from my job of 37 years. My first priority is being with Holli and making sure she is getting the proper care. I am still trying to find placement for her in Nashville. I was hoping to be home for Doug and my birthdays but nothing has fallen into place yet. I want to thank everyone that has been trying to make contacts for us in finding a facility. Your help is so much appreciated. I ask that everyone continues to keep us and our getting home soon in your thoughts and prayers.
Diane
 
I sit imagining what this family is going through. One moment an independent, vivacious, beautiful daughter, then bam, it all changes in an instant. Diane's retirement really hits home.

I hope they will all be OK.
 
6 months since the accident.

A nice note from Diane from http://helpholligethome.blogspot.com/

Sunday, August 23,2009
As I write this update, Holli is intently watching a Harry Potter movie on tv. I am happy that she can enjoy watching tv at times. I am sure she gets bored otherwise. She has smiled a couple of times this week without the aide of her sleeping medication. Once was when I was acting goofy and dancing to a song on a commercial , I turned around and she had a big grin on her face! Then yesterday when Harrison came to see her she smiled at him. It is so good to see her beautiful smile. Physical therapy came Thursday and re-evaluated her and they will be starting to work with her again now that she can follow some commands. That thrills me so much because she needs the stimulation. She had just been getting some stretching of her neck and some range of motion this past month. Her step-father, Doug, is flying out next Saturday for a week. I can't wait to see him....it has been since April since he was out here. We had hoped that Holli and I would be back in Nashville before Doug and my birthdays. Now Doug and I will celebrate them here with Holli in San Francisco. The only thing that matters is that we are together. I still do not have any word on a facility in Nashville. I pray that something will turn up really soon. It will be 6 months tomorrow since the accident. Thank you for your continued thoughts and prayer. I pray for Holli's continued improvement and that the Lord will give her peace and strength throughout her journey.
Diane
Posted by paigereno at 7:15 PM 0 comment
 
I'm a few postings behind, the following from the two sites are listed newest first.


http://helpholligethome.blogspot.com/


Tuesday, September 1, 2009
Another Blessing
Just found out this morning that Holli had the clearance from her doctor to fly commercial airlines instead of having to fly by an air ambulance. We will be flying American Airlines in first class leaving San Francisco at 11:30 am with a 2 hour lay over in Dallas and then arriving in Nashville at 7:45 pm. The company I am dealing with will provide ground transportation bed to bed and a nurse escort. I am so thrilled that everything is falling into place.

Tonight Harrison came to tell Holli good bye. When he walked into the room Holli broke into a big smile and kept on smiling as he talked to her. It was so touching to see. The hard part about us going home is having to tell such wonderful people that I have met here good bye. I will never forget their love and kindness. They have helped me through a very difficult time with such great support. They will always have a special place in my heart. Love you guys!

Diane
Posted by paigereno at 10:05 PM 2 comments
Friday, August 28, 2009
Flying Home September 5th
Holli got her trach out today and is doing great. I know it must feel so much better having that out of her neck. We have gotten the okay from Holli's doctor and Madison Healthcare to take her to Nashville on Saturday, September 5th. I am in contact with an air ambulance service and we will work out the details tomorrow. I can't wait....only one more week. The sad part is leaving all my new friends behind. Everyone has been so wonderful to both Holli and myself. I could not have made it these last 6 months without your friendship and love. I will never, ever forget you. Holli has been so blessed to have wonderful friends that truly care about her. You have helped her get through these past months with your songs, music,laughter, stories and touch and I have made some wonderful friends. I will keep up the blog as we continue this long journey. I hope that you will keep in touch. The address for Holli will be Madison Healthcare and Rehab, 431 Larkin Springs, Madison, Tn, 37115 or you can send it to our home 600 Sue Drive, Antioch, Tn. 37013. May God bless each and everyone of you for being there for Holli.
Diane
Posted by paigereno at 8:53 PM 0 comments
Wednesday, August 26, 2009
We Are Going Home!
Praise the Lord! Holli has been accepted to Madison Health Care in Nashville! My prayers have been answered. We probably won't leave until after Labor Day. She has to have her trach out and do okay with that for before we leave. I will post when I know the exact date. I want to thank every one who has helped me in trying to get Holli back to Nashville. I appreciate each and every one who has made contacts and for all the prayers. This is a great birthday present for me!
Diane
Posted by paigereno at 1:10 PM 9 comment



http://friendsofhollis.blogspot.com/

Saturday, August 29, 2009
Potential Departure Date: Sept. 5th
Talked to Diane today.
Tomorrow Hollis will get her Tracheotomy removed.
They will monitor her for 5 days.
Plans to leave are being confirmed for the 5th.
So soon.

I am leaving for Burning Man.
Through what has been facilitated through this website, I have been thanked for my efforts with a free ticket. I will go into the alkaline desert and give my cares to the wind, polishing my soul in the sandy sun. She would want me to go and it is her fault I am going in the first place. She was the one who introduced me to all those wacky kids with orange and red targets on their backs. DPWers have been my welcoming comittee to the bay area and now I get to see their homeland. OH boy.

I had this guilty fantasy of filming this one long shot of Hollis in her chair going down the hall to the elevator. There is a constant shoulder to shoulder smile from each of her friends on the way out.
Out the elevator there is the same two blockades of smiling people until she and Diane gets into the Ariport Transport.
Oh well, I will just have to imagine it.
Homecoming is a comforting thing.
Posted by Agent Chaos at 12:44 AM 0 comments
Thursday, August 27, 2009
The countdown is beginning..
The world turned a little and things are sorting themselves out.
This post is disjointed. Hopefully you get the idea of what I am saying.

Diane's Husband, Doug, will be here on saturday to celebrate his and her birthdays this weekend. **(Diane's birthday is Sept. 1st, so start shopping for that special something)** She is as wide eyed to see him as a done up teenager in front of the mirror for prom, waiting for the doorbell. It has been so long since their reality of "together." This should be a great weekend of comfort for Diane.
Then, as an earth shattering relief to Diane, a facility in Tennessee gave word yesterday that they have been accepted.

The timeline is not exact, but it will be approximately 2 weeks until their take-off.
The doctoral team will take out the traech tube and wait to see how happy she is for 5 days. Then she is off on phase three of this great journey.

So this weekend I get to fulfill my desire that has been postponed all year.
The desire to continue on our permanent sleepover posse formed by Hollis, Jamie Bond, and I in 2007. I already promised not to give Hollis any alcohol. Haha. I never would anyway , but it is a proper precaution. The other day I went and got a fresh coconut from the new stand on mission and 24th. Hollis was practically chugging this primordial liquid. She was able to tell us she wanted more by lifting her left hand. Communication progress!

For the first time this year, I will be able to take that place on the cot this weekend, letting Diane clock out for some well needed relaxation. For the next few weeks I can get closer to Hollis before she takes flight to the East. I am looking forward to it, but also am sad to see her leave, off into the great unknown. I know that we have all been putting in good work and
hopefully her next step is rapid and powerful.

When I walked into the room and was greeted with this information, Hollis was so happy. She was smiling big and bright. She is going home, moving from the St. Luke's view of ticky tacky houses on the hillside, to a new adventure. I told her to memorize this view, because it is about to change.

Thanks to our true and constant ally, change.
Posted by Agent Chaos at 2:19 PM 1 comments
 
http://helpholligethome.blogspot.com/

Saturday, September 5, 2009
Holli is in Nashville!
It was a very long and tiring day for Holli but she is such a trooper. She had been sitting up in either a wheelchair or airline seat since 7:30 this morning CA time until 9:00 this evening TN time. Holli could not hold her head up for very long but the flight nurse, Diane Risoti, was so good with Holli and used rolled up blankets, pillow and towels to make Holli comfortable. She had to be transfered from one wheelchair to another so many times that I lost count but Diane, the flight nurse , was able to do it without any problems. When we got off the plane we were met by my daughter, Heather, and two of my jazzercise friends, Karen and Darlene. It was a tearful reunion. Then there was Matt who is a dear friend of Holli's waiting outside by the van that was picking us up. I was so thrilled to see him. He has been like a brother to Holli since high school. Holli is now at her new facility. We stayed with her until she had her sleeping pill and was sound asleep. It was so very hard for me to leave her tonight. This is the first time I have left her alone. I left in tears. It will be adjustment for the both of us.
Diane
Posted by paigereno at 10:43 PM 2 comments
 
Wow!!! These all get to me.

I think now is the time to start a fund so that Holli's SF Dance friends can see her regularly in Nashville.

Wish I was wealthy, this would be a wonderful cause.
 
That would be nice, in this post you will see Hollis' address out there.
Diane also talks about a tv piece that we can see from Nashville tv. Further down this post.

From http://friendsofhollis.blogspot.com/

Wednesday, September 9, 2009
Hollis is in Nashville now:
If you would like to visit her:
431 Larkin Springs Rd.
Madison Healthcare & Rehabilitation Center
Room 30.

Many people on the playa sent their best wishes to Hollis as she flew over our heads and the man burned. I will miss her, but am happy that she is finally in a stable place to start stage 3 of her recovery.

I love you Hollis, my wifey, and inspiration.
Thank you for introducing me to so many people when I was a young duckling in the bay area.
You were hiding in my shadow the whole time I traced the dusty earth of the playa.
Your personality unfolded ten times in each direction of the stinging wind.
It is no surprise that the burner community was the glue that held you together.
Everyone is at their best, most giving, and able to receive out there.
You have always been such a provider and collaborator. No wonder.
The playa crews are some of the most inspired and motivated givers I have met.
And you knew those are the people I need to be around.
You have no idea how many souls you have connected me with post-accident.
It has jumpstarted my creativity, a dark sludgy muck this year.
I hope you read this soon.
Thank you, Darling, and get to work.
We would like to see you out and about like a buzzing bee ruffling the petals of newly formed flowers.
Posted by Agent Chaos at 12:42 PM 0 comments


and http://helpholligethome.blogspot.com/

Thursday, September 10, 2009
Video interview
To see the interview with Channel 4 go to www.wsmv.com and then under headlines- Antioch Grad back in Nashville.
Diane
Posted by paigereno at 9:28 AM 0 comments
Wednesday, September 9, 2009
Tv Interview
Channel 4 in Nashville did a follow up interview with me, Heather, Doug and of course Holli. It will be aired at 10 pm tonight but will be on their web site tomorrow. www.wsmv.com. Thanks to Deanna Lambert for doing this story on Holli. I think Holli slept all the way through. She went to PT early this morning and they said she did great on the mat. She sat up in the chair all morning and was very tired this afternoon. Of course she is wide awake now that the tv crew is gone! I will keep you up dated on her progress.
Diane
Posted by paigereno at 4:41 PM 0 comments
Tuesday, September 8, 2009
Holli's New Home
Holli seems to be making the transition to Madison Healthcare Center fine. Everyone at the center has been very friendly and welcoming. The therapy team is very excited about working with Holli which makes me really happy. They plan to start standing her up on the tilt table this week and use the electrical stimulus to help her right side improve.
Holli is in a semi private room but there is no one in the other bed so right now it is like having a big private room. Doug decorated her room today with all the posters, pictures, etc that she had at St. Lukes. It really made the room more personable.
Friends of Holli have been visiting everyday. It is good to have her friends and family there with her to give her love and support. Tomorrow we have an interview with Channel 4. They were suppose to do it today but the reporter had another assignment so it was postponed . They did a story on Holli when we were in India and now they want to do a follow up. I hope I make it through this interview. I get nervous just thinking about it! Wish me luck.
Diane
Posted by paigereno at 8:59 PM 0 comments
 
From http://helpholligethome.blogspot.com/

Sunday, September 13, 2009
1st Week at Madison Healthcare and Rehab
Can't believe we have been home for a week. Holli seems to be adapting to her new environment. She is in a semi-private room but does not have a room mate at this time so we have a big room. I hope it stays that way so Holli can get her rest and have her quiet times. Physical and Occupational therapy are really excited about Holli and how she works really hard to do what is asked of her. I am so happy that she will be getting therapy 5 days a week and that they are being aggressive with her. That is exactly what she needs. My husband, Doug, decorated her room with the pictures, posters, etc. that was in her room at St. Luke's hospital. She can look on her wall next to her bed and see pictures of her friends back in San Francisco.
As for me, I am so happy to be home with my family and sleeping in a real bed! I usually come out everyday for now except Tuesdays, Heather stays with Holli, and stay until she gets her sleeping medication and sound asleep. I always have her music playing softly encase she wakes up during the night. It is hard for me to leave her but I know it is what I must do to keep myself going . I thank you for your continued prayers and thoughts.
Diane
Posted by paigereno at 10:06 AM 0 comments
 
Thank you so much for keeping us posted!!
 
If you have a fundraiser that you could use some books to auction off, I'd be happy to donate copies of Chicks On Bikes. Check out my site below.

I wish her the best for health and recovery. As one who learned to ride in northern thailand as a crazy uninsured 23 year old, I really feel I was lucky to escape only partly scathed.
__________________________
Christina Shook
photographer and author
Chicks On Bikes:
a portrait of woman motorcyclists
www.ChicksOnBikes.us

twitter: http://twitter.com/cshookup
blog: http://cshook.wordpress.com
 
ShookUp said:
If you have a fundraiser that you could use some books to auction off, I'd be happy to donate copies of Chicks On Bikes.
Click to expand...
That is a very nice offer!
I think the best way to handle it might be to get a hold of Eliza and tell her about it. Let me know if you need me in the mix, but I've never communicated with her before.
It also occurred to me that one way to make sure you don't just send books to a well meaning individual and have them sit in a box might be to offer 1/2 of the proceeds for a certain amount of books sold that you could paypal into Hollis' fund. Since I assume you are set up for distribution this might be a good way to go about it. You could also offer books to auction like you already suggested. However you see fit, it's a lovely gesture, thanks. I'm sure Eliza would post the donation on the http://friendsofhollis.blogspot.com/ website.
Her email is eliza@friendsofhollis.com
 
From http://helpholligethome.blogspot.com/


Just wanted to let you know that I have also set up caring bridge site for Holli. The web address is www.caringbridge.org/visit/hollihawthorne . I will try to keep this site updated along with this blog.

Holli has had a good week except for a brief episode Monday of an elevated temperture. The urine culture came back negative and she has not had any more problems. Therapy has tilted her twice this week and she tolerated it fine. They only got her up to a 40 degree angle but will try to tilt her up more next week. She is moving her left arm more and more but still has not talked. She smacks her lips and yawns really big at times. She enjoys watching tv, especially the arts station.

Heather had it arranged for me to have 3 days at home this week. Holli's father, Dick and his family, Karen and Penny, Heather and my good friend, Meg helped stay with Holli those three days. It was nice being able to get some rest and errands taken care of which I am unable to do when I need to be here with Holli. I will be with her the rest of the week. The therapist said they thought that Holli missed me....I know I missed being out here with her and that I called alot checking on her.... thanks guys for putting up with me!

We have had alot of rain this week....4 inches so far and they are calling for possible rain this weekend. I missed seeing the rain in San Francisco but I have made up for it now! I am ready for sunshine.

Looking forward to seeing my sister, Deree, from Starkville, Ms this weekend. Her son plays football for Miss State and they play Vanderbilt here tomorrow night.

I also want to wish my Mom a very, very Happy 83rd Birthday tomorrow. Hope you have a great day! I love you.

Diane
Posted by paigereno at 4:10 PM 3 comments
 
I might have missed one from here, you should check if you are keeping score.
http://helpholligethome.blogspot.com/Wednesday, September 23, 2009
Good News
Today in speech therapy Holli was given yes and no signs and asked several questions. After each question she would take a moment and then move her left arm up and over and place it on the appropriate sign!! We are so excited...now we will be able to communicate better with her. This is another blessing and step in her road to recovery.
Tomorrow I meet with the Tennessee human services to apply for her long-term care financial benefits from the state. That is who will be paying for her stay at Madison Healthcare and Rehab. I asked for your special prayers.
Diane
Posted by paigereno at 2:06 PM 1 comments
 
http://helpholligethome.blogspot.com/
Wednesday, October 7, 2009
Holli continues to smile and laugh whenever someone says or does something funny. It is so great to see her happy and to hear sounds when she gets really tickled. The therapy team as well as the staff are so thrilled that Holli is smiling and laughing. She has really made progress this past month since we have been home. There is less tone in her extremities and neck. She is consistent with moving her left arm for yes answers and keeping it still for no. I can't wait until she can verbally tell us the answers.

After several days of gloomy and rainy weather we are having a beautiful sunny day. Holli and I went outside and enjoyed the great weather. I can't wait to see the leaves change colors. After all the rain we got this past month we should have a beautiful fall. The nights are getting cooler but the day time temps are nice. I hope it stays that way for awhile so Holli can go outside and enjoy the fresh air.

I am going to Chattanooga, Tn tomorrow for my nephew's wedding so Holli's dad and family will be staying with her until I return. I am looking forward to being with my family since I will not get home for the holidays. I will be here with Holli during those times. This will be like a mini vacation for us. The first one since last Thanksgiving. I will miss being with Holli but I know she will be taken good care of while I am away.

Diane
Posted by paigereno at 12:55 PM 0 comments
Thursday, October 1, 2009
Holli Laughs!
Today Holli was visited by Jessica from San Francisco and Nichole and Kevin from Louisville. They were here yesterday to visit Holli but I think she slept most of time. I was glad to be able to meet them since Heather and Dick were here yesterday with Holli. Today Holli was very much awake during their visit. She started smiling really big when they came in the door. As they were telling Holli funny stories and jokes Holli started laughing! She would get so tickled at times that you could hear a throaty sound coming out! It was amazing....this is the first time I have heard or seen her laugh. She has smiled before but never laughed. This went on for the three hours of their visit. They were here to watch Holli on the standing table. This was the first time she had done this in therapy. After she was put in the chair we took Holli outside in the courtyard to enjoy this beautiful fall day. I am so thankful to her friends for making Holli happy today. You have truly blessed our day.
Diane
Posted by paigereno at 2:08 PM 2 comments
Tuesday, September 29, 2009
Tuesday, September 29th
Just talked to Heather, Holli's sister, who is staying with Holli today along with her dad, Dick. Holli has had another good day today. They started yesterday turning off Holli's feeding during the day so she can have some freedom. Now we can lay her flat during this time and take her outside when she is up in the chair. Today Holli was put on the tilt table and she was tilted up to 70 degrees and tolerated it very well. Then she was put in the chair and Heather took her outside to get some sunshine and fresh air. The weather today is beautiful....a crisp fall day with blue skies. Heather told her when she was ready to go inside to lift her left arm. She was very content for about 30 minutes and then started lifting her left arm. Heather took her back in and they got her back in bed and she immediately fell asleep. She was tired from her very active afternoon. I will be back with Holli on Thursday and will be with her everyday until next Thursday. Doug, Heather and I will then be going to Chattanooga for my nephew's wedding. Holli's dad and family will be taking care of Holli during that time. I can't wait to see my family at the wedding.
Diane
Posted by paigereno at 2:55 PM 2 comments
Wednesday, September 23, 2009
Good News
Today in speech therapy Holli was given yes and no signs and asked several questions. After each question she would take a moment and then move her left arm up and over and place it on the appropriate sign!! We are so excited...now we will be able to communicate better with her. This is another blessing and step in her road to recovery.
Tomorrow I meet with the Tennessee human services to apply for her long-term care financial benefits from the state. That is who will be paying for her stay at Madison Healthcare and Rehab. I asked for your special prayers.
Diane
Posted by paigereno at 2:06 PM 2 comments
http://www.friendsofhollis.blogspot.com/
Tuesday, October 6, 2009
The Hun visited Hollis and here's what she says:
Okay, so Hollis isn't quite up to saying "hello" out loud: her talking phase only lasted a few days. But damn if she didn't laugh her ass off today! She looks great, and is progressing by leaps and bounds here in Tennessee. Kevin and Not-It made bad jokes at that girl until she laughed out loud--the first time she'd laughed aloud since her injury. We kept her laughing for hours with the help of kazoos, stories and DPW news.

Plus, today marked the first time she got completely vertical, with lots of help from the badass physical therapists here. Her right side is starting to move a little, and she's working hard to hold her head up. She can now answer yes/no questions by lifting her left arm for a yes answer. There is absolutely no doubt about it: Hollis is in there, and she's fighting hard to get her muscles back under control. The therapists say her background as a dancer is making a big difference.

Lots of work still to do, but the improvement since I saw her 5 months ago is absolutely astounding. We'll be dancing in the desert again in no time. We all left with a lot of joy and hope about her progress.

So anyway, Hollis is spending a lot of time listening to music these days. Her ipod is hooked up, and Diane puts it on random. You know what that means: SEND MUSIC! Anybody with good tunes that you think Hollis will like, make a little mix and send it down to Diane Allison, 600 Sue Dr., Antioch TN 37013. You can send presents, letters, donations, art and sock puppets there too... but music, comedy and audiobooks will really do the trick right now.

xo
Hun
 
http://helpholligethome.blogspot.com/


Saturday, October 17, 2009
Holli has been quieter this week but she is still smiling and laughing appropriately. I am not sure if she is quieter because we are trying to wean her off some of her medications or that it is just a mood that she is in at this time. The weather has been gloomy, rainy and cold the past several days. I know that effects my mood! Today it feels like winter outside not getting out of the 40's. I will be glad when it warms back up next week and we are able to go outside. One thing this week that Holli did in speech therapy that I have not seen her do is when Kelly, the speech therapist, put a toothette in her mouth then told Holli to pull it out. Holli reached up with her left hand an pulled it out of her mouth. We are not sure if she is having some dental problems but she is set up to see the dentist in the mobile unit on the 26th. I hope if it is a problem with her teeth that he can fix the problem and then hopefully she will open her mouth so we can do proper mouth care. On Monday while she was watching Ellen on tv, there was someone riding a bicycle on the show. Karen, her step-mom, said Holli perked up, started smiling and then moved her legs like she was riding a bike! Of course it was mostly her left leg but she was trying to move her right also. I am sure she misses riding her bike. I want to thank the DPW gang for the present they sent Holli. We got it in the mail yesterday and I brought it out with me this morning. She was very intent looking at all the signatures on the plagues. I am sure it means alot to her to be remembered by her friends. I showed her pictures on facebook of her friends and family that I am linked with and she really enjoys looking at all the pictures. Keep on posting pics so I can show them to her. Hope everyone has a great weekend. I will post again next week. Diane
Posted by paigereno at 4:00 PM 0 comments
 
Thanks as always for keeping us informed dOGHAIR
 
I know Holly can't say it yet, so I'll say it for her, "Thank you for loving me and taking care of me Mom!"

You are an excellent example of motherhood and have demonstrated to perfection the concept of unconditional love. :rose
 
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